I should note that when we started to receive comments on what was to become the NIH DMS Policy, one thing in particular stood out to us. Many commentors told us it would be helpful to have clear information on how to protect the privacy and respect the autonomy of participants when sharing data. Now, we all know that cliffhangers build anticipation, so without further delay, I want to share with you some of the tools NIH has been working on to answer that call.
Dr. Lyric Jorgenson provides an update on what NIH is doing to make our data management and sharing efforts a success on the one-year mark prior to the Data Management and Sharing (DMS) Policy’s effective date.
NIH released a “Request for Information on Proposed Updates and Long-Term Considerations for the NIH Genomic Data Sharing (GDS) Policy.” This is your opportunity to help us shape the future of the GDS Policy. Stakeholder input is the key to ensuring that NIH strikes the right balance when updating the GDS Policy. Comments will be accepted until February 28, 2022.