Open science is a priority at NIH and across the U.S. Federal Government. Today, we are pleased to announce that the “NIH Plan to Enhance Public Access to the Results of NIH-Supported Research” (NIH’s Public Access Plan) is now available for public review and comment.
To fully benefit from the exponentially growing body of biomedical data, we need cutting-edge approaches that foster data access, analysis, sharing, and collaboration so novel scientific questions can be pursued. But the sheer volume, sometimes siloed nature, along with the costs and time associated with analyzing large datasets, can be difficult for some researchers. Recognizing these concerns, NIH is helping by hosting large data sets and bringing together computational tools and cloud technologies in ways that support open access, interoperability, and collaborative analyses. We encourage you to explore how these resources may help accelerate your research in ways not possible before. Read on for more…
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Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary results for most of the studies we support in order to advance health or further research purposes. These summary results are importantly distinct from other genomic research data, most notably in that they do not include individual-level information. Instead, these results come from analyzing pooled genomic data from multiple individuals together to generate a statistical result for the entire dataset. Such information can be a powerful tool for helping researchers determine which genomic variants potentially contribute to a disease or disorder.
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