As we work towards the January 25, 2023 effective date of the new NIH Data Management and Sharing (DMS) Policy, we continue to develop resources and implementation information to help the community prepare. We will be supporting you with additional resources and guidance through the change.
Make sure you’re prepared for the new NIH Data Management and Sharing (DMS) policy, coming January 25, 2023! We invite you to join experts from the NIH Office of Science Policy and the NIH Office of Extramural Research for an informative and interactive webinar series focused on what the DMS policy means for applicants, awardees and institutions.
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A $500,000 prize purse, rewarding data sharing and reuse in biomedical research, is a new, innovative strategy for supporting the research community.
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I should note that when we started to receive comments on what was to become the NIH DMS Policy, one thing in particular stood out to us. Many commentors told us it would be helpful to have clear information on how to protect the privacy and respect the autonomy of participants when sharing data. Now, we all know that cliffhangers build anticipation, so without further delay, I want to share with you some of the tools NIH has been working on to answer that call.
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I am very pleased to announce the availability of a new website on Scientific Data Sharing. Whether you are involved in an NIH-funded project and want to understand which sharing policies apply to your research and how to comply, or you are a researcher looking to access scientific data from NIH-affiliated repositories, this site is for you.
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If you’re working on NIH-funded research, you probably know the new NIH Data Management and Sharing (DMS) Policy goes into effect January 25, 2023. Don’t worry — there are several resources in the works to help you prepare! In April we are launching a new NIH Scientific Data Sharing website, a one-stop shop for all the information you need to know about NIH sharing policies.
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Dr. Lyric Jorgenson provides an update on what NIH is doing to make our data management and sharing efforts a success on the one-year mark prior to the Data Management and Sharing (DMS) Policy’s effective date.
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NIH continues to work with the research community to ensure we address resource needs associated with the NIH Data Management and Sharing Policy. Today the NIH Office of Science Policy is releasing a new set of FAQs on questions we have heard over the past year, and are also seeking public comment on a new resource for researchers that promotes responsible management and sharing of American Indian/Alaska Native (AI/AN) participant data.
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NIH is committed to ensuring that study participants are equal partners in research and have input into how their data and biospecimens are collected and used in the future. At the heart of any research effort lies the need for transparent and clear conversations between researchers and prospective participants about mutual goals and expectations regarding sharing practices.
To assist in facilitating this dialogue, NIH has been working with stakeholders to identify informed consent language “best practices” capable of effectively describing how data and biospecimens will be stored and shared for future research. From these conversations, NIH has developed a new resource that we are seeking the community’s feedback on. The resource describes points to consider when addressing this issue, and provides sample consent language that researchers can tailor based on their own unique study needs…read on for more…
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Common Data Elements (CDEs) are a type of health data standard that is commonly used and reused in both clinical and research settings. CDEs provide a way to standardize data collection—ensuring that data are collected consistently, and otherwise-avoidable variability is minimized.
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