Common data elements (CDEs) are standardized, precisely defined questions paired with a specific set of allowable responses, used systematically across different sites, studies, or clinical trials to ensure consistent data collection. Learn more at this upcoming training!
On October 1, NIH is adding several new Data Management and Sharing (DMS) questions to Research Performance Progress Reports (RPPRs) and updating the process for submitting revised DMS Plans to NIH for review.
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NIH has issued an implementation update for data management and access practices under the Genomic Data Sharing (GDS) Policy which introduces updated security standards for Approved Users of controlled-access data shared under the NIH GDS Policy and for repositories and/or systems storing or providing access to these data. The updates will take effect on January 25, 2025.
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Biomedical research has generated millions of datasets and we are issuing a $500,000 challenge to get the most out of them. The 2024 DataWorks! Prize invites you to conduct a secondary research analysis project that generates new scientific findings from existing datasets.
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NIH will be updating the Research Performance Progress Report (RPPR) instructions to address the NIH Data Management and Sharing Policy.
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Do you have thoughts on how common data elements (CDEs) may be used in NIH-supported clinical research? If so, please share them in response to a recently released Request for Information.
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In a world of rapidly changing digital expectations, new formats to access and store information, and a dynamic biomedical landscape, users want to connect to data across an abundant, widely available, and growing ecosystem of biomedical research with one click. That is the future we are working to create by leveling up our dataset discovery technology to better understand user expectations and enhance the user experience.
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Last year, NIH was one of several federal agencies to join the White House Office of Science and Technology Policy in their celebration of 2023 as the Year of Open Science. Let’s break down this definition of open science.
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Since March, we have engaged with the Federal Demonstration Partnership to pilot test two DMS plan templates. These templates were developed in close collaboration with staff and leadership from offices across NIH, and we seek your input on them.
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We’ve updated our FAQs to address questions regarding concerns when sharing scientific data that could be the subject of a patent application, or that were generated under SBIR/STTR awards.
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