An important part of sharing scientific data is protecting the privacy of human participants who contributed to the data.
NIH’s scientific data sharing site now offers information and resources on the following topics:
- Principles and Best Practices for Protecting Participant Privacy
- Designating Scientific Data for Controlled Access
- Considerations for Obtaining Informed Consent
- Considerations for Researchers Working with American Indian/Alaska Native (AI/AN) Communities
For further information on working with human participants in research, please visit NIH’s Human Subjects Research page.