July 16, 2009
7:30 a.m. – 4:30 p.m.
Main Auditorium, Natcher Conference Center, Building 45, NIH campus, Bethesda, MD
This conconference will provide a forum to:
- Discuss lessons learned from the Rare Diseases Clinical Research Network
- Highlight successful collaborations to improve rare diseases research
- Highlight the involvement and essential role of patient advocacy groups to facilitate research and accrual of patients
- Discuss the role of best practices across research consortia and research networks for translation of basic discoveries into clinical practice in rare diseases.
This event is free and open to the public. Early registration is strongly encouraged due to space limitations.
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