We are developing an NIH-wide strategic plan for diversity, equity, inclusion, and accessibility (DEIA).
NIH released a “Request for Information on Proposed Updates and Long-Term Considerations for the NIH Genomic Data Sharing (GDS) Policy.” This is your opportunity to help us shape the future of the GDS Policy. Stakeholder input is the key to ensuring that NIH strikes the right balance when updating the GDS Policy. Comments will be accepted until February 28, 2022.
The White House Office of Science and Technology Policy and National Science Foundation are looking for your input to shape the work of the National Artificial Intelligence Research Resource (NAIRR) Task Force.
Common Data Elements foster rigor, facilitate data sharing, and allow multiple datasets to be integrated. They also help make data more FAIR (Findable, Accessible, Interoperable, and Reusable). Many different CDEs are currently in use and can vary across research disciplines, so we would encourage researchers check out databases like the NIH CDE Repository for examples, tools, and other related resources. Through a recently released Request for Information (NOT-LM-21-005), we seek your thoughts on how you use CDEs, potential challenges to their adoption, and how NIH might facilitate and incentivize their use to help us plan future CDE-related efforts.
Learn more about the planning process and ask questions at one of the upcoming webinars (3/9, 3/16) hosted by NIH, registration required.
Have suggestions to improve the American research environment? The National Science and Technology Council’s (NSTC’s) Joint Committee on the Research Environment (JCORE) wants to hear from you! Make your voice heard in response to JCORE’s Request for Information (RFI), seeking input on actions that Federal agencies can take, working in partnership with private industry, academic institutions, and non-profit/philanthropic organizations, to maximize the quality and effectiveness of the American research environment.
NIH is currently accepting public comments on the use of standards for capturing, integrating, and exchanging clinical data for research purposes (NOT-OD-19-150). This is a great opportunity to hear more from the community on ways to strengthen approaches that find, share, and access high-quality patient data, while also making it more interoperable and reusable. Such goals align with long-standing NIH data sharing policies and what was also called for in a related NIH strategic plan on data science.
Promoting scientific environments that can encourage and benefit from a full range of talent is necessary in biomedical research today. The NIH Common Fund is conducting strategic planning for a potential new program exploring ways to create a route of entry and advancement for talent from diverse backgrounds into independent academic faculty positions. NIH is seeking broad input on this approach from academic institutional leadership, biomedical faculty, and interested members of the public.
NIH has long been committed to transparency into who and what we fund. We have previously discussed the value of freely-available web tools that allow you to gain insight into NIH funding decisions. Award data available via RePORT and RePORTER, for instance, include non-sensitive information such as awardee institution, principal investigator, funding levels, research abstracts, as well as associated publications, patents, and other project outcomes. The data available through RePORT are quite powerful in their own right. However, compelling arguments exist for why researchers outside NIH should have access to even more information associated with the grants process.
Comments Welcomed on the Draft Report Recommending How to Reduce Administrative Burden in Research with Laboratory Animals: A Next Step in Implementing the 21st Century Cures Act
The 21st Century Cures Act requires federal agencies to “review applicable regulations and policies for the care and use of laboratory animals and make revisions, as appropriate, to reduce administrative burden on investigators while maintaining the integrity and credibility of research finding and protection of research animals.” This past March we requested feedback from the public on ways to reduce regulatory burden while also maintaining the highest standards for protecting animal welfare and scientific integrity. You responded with constructive and helpful feedback with more than19,000 comments. Generally, many responses supported the actions initially proposed in the request, but they were balanced with concerns from animal advocacy and other groups.