The White House Office of Science and Technology Policy (OSTP) and National Security council recently released a Request for Information seeking ideas on strengthening the national capacity of clinical trial infrastructure and emergency clinical trials.
The 21st Century Cures Act called for NIH to collaborate with the U.S. Department of Agriculture and Food and Drug Administration to reduce administrative burdens associated with laboratory animal research programs, while maintaining high standards of animal welfare as well as the integrity and credibility of the research. We jointly released a final report in 2019 outlining steps to accomplish this goal, and have since worked together to implement many of the recommendations. We wanted to take this opportunity today to share some of NIH’s progress and how you can remain involved.
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We are developing an NIH-wide strategic plan for diversity, equity, inclusion, and accessibility (DEIA).
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NIH released a “Request for Information on Proposed Updates and Long-Term Considerations for the NIH Genomic Data Sharing (GDS) Policy.” This is your opportunity to help us shape the future of the GDS Policy. Stakeholder input is the key to ensuring that NIH strikes the right balance when updating the GDS Policy. Comments will be accepted until February 28, 2022.
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The White House Office of Science and Technology Policy and National Science Foundation are looking for your input to shape the work of the National Artificial Intelligence Research Resource (NAIRR) Task Force.
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NIH is committed to ensuring that study participants are equal partners in research and have input into how their data and biospecimens are collected and used in the future. At the heart of any research effort lies the need for transparent and clear conversations between researchers and prospective participants about mutual goals and expectations regarding sharing practices.
To assist in facilitating this dialogue, NIH has been working with stakeholders to identify informed consent language “best practices” capable of effectively describing how data and biospecimens will be stored and shared for future research. From these conversations, NIH has developed a new resource that we are seeking the community’s feedback on. The resource describes points to consider when addressing this issue, and provides sample consent language that researchers can tailor based on their own unique study needs…read on for more…
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Common Data Elements foster rigor, facilitate data sharing, and allow multiple datasets to be integrated. They also help make data more FAIR (Findable, Accessible, Interoperable, and Reusable). Many different CDEs are currently in use and can vary across research disciplines, so we would encourage researchers check out databases like the NIH CDE Repository for examples, tools, and other related resources. Through a recently released Request for Information (NOT-LM-21-005), we seek your thoughts on how you use CDEs, potential challenges to their adoption, and how NIH might facilitate and incentivize their use to help us plan future CDE-related efforts.
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From shifting public health needs to the unprecedented pace of biomedical discovery, everything about the coronavirus response is evolving. This goes for the NIH-Wide Strategic Plan for COVID-19 Research as well, so too must it evolve.
We want your help on the next iteration of the Plan. A Request For Information released yesterday seeks public feedback on the current Plan (NOT-OD-21-018). You or your organization can submit ideas here by December 7, 2020.
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We all have a vested interest in maintaining the integrity of biomedical research. It is critically important to do so, after all, so the public can trust the resulting scientific findings. These posts from 2020, 2019, and 2018 highlight a few ways NIH works toward this goal of an environment promoting integrity and discouraging misconduct (check out this NIH All About Grants podcast for more on this).
Now it’s your turn to share some ideas. Our colleagues with the HHS Office of Research Integrity (ORI) recently published a Request for Information seeking your input. The feedback they receive will be invaluable for conducting future outreach and developing educational resources for the research community.
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Ever figured out a clever solution to a vexing challenge that affected the rigor of your work with laboratory animals, and then thought that those solutions could improve the quality and transparency of animal research supported across NIH? Recently found yourself at virtual lab meetings brainstorming ways to facilitate translating the findings from your animal study to human biology and disease? Questioned the status quo on how the research culture drives the choice of animal models and the design of experiments? Well, we want to know more.
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