Looking for Help When Drafting Consent for Research under the Genomic Data Sharing (GDS) Policy?

Under the NIH Genomic Data Sharing Policy, investigators who intend to generate genomic data using research or clinical specimens collected or cell lines created after January 25, 2015 may only do so with consent, even if the data are generated from specimens that are de-identified. If the NIH genomic data sharing policy applies to your research, you will want to check out the new NIH Guidance on Consent for Future Research Use and Broad Sharing of Human Genomic and Phenotypic Data Subject to the NIH Genomic Data Sharing Policy. It’s a great resource to help you in communicating to prospective participants during the consent process, and meeting NIH’s genomic data sharing expectations.

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